Project 808 | From evidence to equity: co-producing usable AF self-management support for primary care

This activity aims to build and extend on what we have already learned from the PALP-AF study (SPCR FR9) and work with patients and members of the public to understand how evidence can be made more useable, accessible and fair for people living with atrial fibrillation (AF), particularly those who are currently underserved (ethnic minorities, digitally excluded and rural, remote or coastal communities).

Although PALP-AF has produced clear and accessible evidence summaries, we now need to understand;
1) What works well for people in real life,
2) What feels confusing, missing or difficult to use, and,
3) What needs to change so that AF self-management support can be accessed earlier and more easily through primary care (GP practices and community pharmacies).

The key objectives are to;
1) Explore how people with AF, especially those who are digitally excluded, have low health literacy, live in rural, remote or coastal areas or belong to ethnic minority communities, or live with multiple long-term conditions experience and understand PALP-AF evidence.
2) Co-produce clear guidance on how AF self-management support should be designed and delivered in primary care.
3) Identify the most important unanswered questions/priorities to shape future research and funding applications.

Approach
We will run three linked involvement activities delivered online or in a hybrid format to maximise accessibility;
1) A mixed PPI workshop with existing PALP-AF contributors and new members to reflect on what we learned so far from PALP-AF, what feels most useful and what is missing.
2) A community-focused workshop delivered with a partner organisation (such as a GP practice, community pharmacy or charities) to hear directly from underserved groups about barriers, preferences and practical needs.
3) Co-design and prioritisation session, bringing together learning from both workshops to agree what AF self management support should look like in primary care.
Together these sessions will produce,
1) A set of design and delivery requirements,
2) A prioritised list of key future research questions,
3) Two prototype information resources (e.g. an infographic and a “questions to ask your GP/pharmacist” prompt card), and
4) An inclusion checklist to help adapt PALP-AF materials for people who are digitally excluded or have low literacy.
All contributors will be paid according to NIHR guidelines.