IMprovIng access to DemeNtiA caRE for BriTish ethnic minorities

Background

In England, over 800,000 people have dementia, 25,000 of whom are people from ethnic minorities. Recognising dementia as early as possible is the best way to support patients and their families. However, many patients from ethnic minorities and their families do not receive care for dementia. It is clear that we need to improve access to dementia care for patients and their carers from ethnic minorities. The first step for doing so is to understand barriers encountered by patients and carers from ethnic minorities when seeking care for dementia.

Research Aim

This study will try to understand the views and experiences of ethnic minority patients and carers about barriers for accessing care for dementia.

Methods

We will identify all the published qualitative studies, which explored the personal views and experiences of patients and carers from ethnic minorities around accessing dementia care and we will synthesise the results of these studies. We will hold meetings and discussions with patients and carers from ethnic minorities throughout this study. Also, future research work will be developed together with patients and carers to take into account their needs.

Dissemination

Links to stakeholders in NHS will be expanded to translate the findings of this project as widely as possible.